Category Archives: Cancer Research

Understanding the impact of cancer on caregivers

Whether you love this holiday or completely despise it, Valentine’s Day is this Saturday. If you’re a person who loves Valentine’s Day, this is a day to celebrate love and companionship. But when your Valentine is living with cancer and … Continue reading

Posted in Cancer Research, Cancer Support | Tagged , , , , | Leave a comment

Elevating the Patient Voice: 3 things we learned from Cancer Experience Registry data

Since its launch in March 2013, the Cancer Support Community has asked people impacted by any type or stage of cancer to share the issues and concerns that defined their cancer journey with the Cancer Experience Registry. As of today, … Continue reading

Posted in Cancer Research, CSC News | Leave a comment

What exactly is a registry, anyway?

The Cancer Experience Registry serves a vital role in helping researchers better understand the cancer journey, but what exactly is the Cancer Experience Registry? Generally, a medical registry is a system for collecting, organizing and analyzing the experiences of individuals … Continue reading

Posted in Cancer Research, Living with Cancer | Leave a comment

I’m not SHOUTING – I just want my voice to be heard

Guest blogger, Kay Johnson, CML survivor You’re used to making decisions. You multi-task while leading others in your job. Suddenly, you’re being told the decisions; you’re excruciatingly tired and weak; you can barely decide what to have for dinner. That … Continue reading

Posted in Cancer Research, Cancer Treatment, Living with Cancer | Tagged , , | Leave a comment

The lung cancer community speaks out

During a public meeting at the Food and Drug Administration (FDA) last month, a lung cancer survivor shared her experience. When she was diagnosed years ago, the first thing her doctor said to her was, “How should we begin your … Continue reading

Posted in Cancer Advocacy, Cancer Research, Cancer Support, Cancer Treatment, Living with Cancer | Tagged , | Leave a comment