Category Archives: Cancer Research

What exactly is a registry, anyway?

The Cancer Experience Registry serves a vital role in helping researchers better understand the cancer journey, but what exactly is the Cancer Experience Registry? Generally, a medical registry is a system for collecting, organizing and analyzing the experiences of individuals … Continue reading

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I’m not SHOUTING – I just want my voice to be heard

Guest blogger, Kay Johnson, CML survivor You’re used to making decisions. You multi-task while leading others in your job. Suddenly, you’re being told the decisions; you’re excruciatingly tired and weak; you can barely decide what to have for dinner. That … Continue reading

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The lung cancer community speaks out

During a public meeting at the Food and Drug Administration (FDA) last month, a lung cancer survivor shared her experience. When she was diagnosed years ago, the first thing her doctor said to her was, “How should we begin your … Continue reading

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Giving back by sharing your voice through the Cancer Experience Registry

If sharing your cancer journey could enhance the lives of others, would you help? I keep hearing that people who have been diagnosed with cancer want to give back.  They want to “pay it forward” so that the next person … Continue reading

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A focused fact finding mission: The Cancer Experience Registry

By Leo J. Dierckman The launch of the Cancer Support Community’s Multiple Myeloma Cancer Experience Registry is a huge step forward for all of us that have been afflicted with MM. Thank you! Thank you! CSC and the entire team … Continue reading

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