Category Archives: Research

I’m not SHOUTING – I just want my voice to be heard

Guest blogger, Kay Johnson, CML survivor You’re used to making decisions. You multi-task while leading others in your job. Suddenly, you’re being told the decisions; you’re excruciatingly tired and weak; you can barely decide what to have for dinner. That … Continue reading

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The lung cancer community speaks out

During a public meeting at the Food and Drug Administration (FDA) last month, a lung cancer survivor shared her experience. When she was diagnosed years ago, the first thing her doctor said to her was, “How should we begin your … Continue reading

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Giving back by sharing your voice through the Cancer Experience Registry

If sharing your cancer journey could enhance the lives of others, would you help? I keep hearing that people who have been diagnosed with cancer want to give back.  They want to “pay it forward” so that the next person … Continue reading

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A focused fact finding mission: The Cancer Experience Registry

By Leo J. Dierckman The launch of the Cancer Support Community’s Multiple Myeloma Cancer Experience Registry is a huge step forward for all of us that have been afflicted with MM. Thank you! Thank you! CSC and the entire team … Continue reading

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Making a difference for others with cancer

A diagnosis of cancer can be devastating and a journey that is unclear to those moving through it. Yet patients who have faced cancer are more than willing to share information about their experience perhaps with the hope that their … Continue reading

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